Wednesday, January 27, 2010

Bump in The Journey

Monday was big day for Jaden. Sweet Jaden loves to lay his head on the left side- he has done this since he was born. I never really thought anything of it until I noticed the left side of his head was starting to flatten. We mentioned it to the pediatrician who at the time did not think it was anything to be concerned about. However the last couple of months we have noticed it more, and we started noticing that he never really looked the other way. So we mentioned it again and this time he sent us to a physical therapist to see if there was an issue with his neck...and there is! He was most likely positioned a certain way in the womb that caused the right side of his neck to tighten up making it hard to turn that direction, and now that his head is flat on the left side, it has become his favorite way to look.

So they sent us to Charlotte to Cranial Technology, a place that specialized in helping restructure the head. I was praying that Jaden head would be mild, but after a series of pictures and an exam he is considered "severe" meaning his flattened spot is now affecting the alignment of his face. You would not (or maybe you would...) notice to look at him straight on, but from certain angles you can really see there is a problem.

God has blessed us with two beautiful boys, and they are my miracles and my gifts. I am thankful for each of them and as a mother my heart broke yesterday as I realized my "perfect" gift needed a little helmet to help his little (in my eyes perfect) head. You can visit Cranialtech.com to see what Jaden will have to wear for a few (maybe more) months. After meeting with the therapist and driving two hours back home I think the reality started to hit us. This is really not a big deal and could be something so much worse but I hate that sweet little Jaden even has to go through all of this. He will now have weekly appointments with the physical therapist and weekly appointments for his helmet, which is located conveniently in Charlotte...a 2 hr. drive each week for a 5 month old.

I don't ever want to complain, but even with our amazing insurance we are looking at paying $1900 dollars, and that is for just one helmet, they think because Jaden is considered severe he will need another one and that one will be $2500, this is all after our wonderful and amazing adoption but that left us $18,000 in debt. I don't post these numbers to make you feel bad for us, but I have always been so honest on this blog and I am not about to stop. I know God will provide but I tend to look at our bank account and wonder just where the money going to come from....but I know God is a provider, He WILL provide!

You know after walking the journey of infertility I think there is a part of you that thinks wants you achieve the goal of parenthood that things should be a little easier because of the difficulty in getting there. This is such wrong thinking and I KNOW that, it is a constant battle against the flesh. I don't deserve a breath, I don't deserve life, but the Lord grants everyday to me- and after all He has done why would I start doubting His provision now? I have to believe that because things are tough right now that we are doing exactly what God has called us to do because satan is hating us and throwing anything he can our way. But we WILL prevail, not because of anything I am doing but because of everything HE is doing!

I have posted this saying from our Pastor many times in the past, especially when I was going through such dark days, I post it again because it is what I am holding onto...
"Where praise is the presence of the Lord is, and where the presence of the Lord is satan CANNOT DWELL...” So in the midst of yet another storm, we will praise, because we already know God has it all taken care of and also because (another great quote from my Pastor)”God will not attend your pity party, not even if you give him a hat!"

8 comments:

Lisa said...

I used to work at an Early Intervention program and we had several little children with these helmets - we offered physical therapy there in addition to other early intervention programs. I just say that to say, there are many children out there that have to wear these, you aren't alone!

As I was reading your blog this verse came to mind...it was the Bible Verse of the day for me today!

"Our struggle is not against flesh and blood, but against the
rulers, against the authorities, against the powers of this dark
world and against the spiritual forces of evil in the heavenly
realms. Therefore put on the full armor of God, so that when the
day of evil comes, you may be able to stand your ground, and after
you have done everything, to stand."
-- Ephesians 6:12-13

Praying for you guys, especially for your financial situation!

Ryan & Amber said...

Beth, in my quiet time this morning, study covered John 13. The thing that struck me about vs. 2 and vs. 18-30 are that Jesus is ALWAYS in control and that even though satan is allowed to do things, Jesus is even in control of what and when he's allowed to do it. It's so encouraging to know that sin and evil have NO POWER over those who love and follow Jesus. I know in the midst of spiritual warfare that Jesus is holding you, Kevin, Jaden & Ty in His hand, and nothing can snatch you out!

Praying for you guys and for Jaden's treatments.

Love you!

Stacey said...

I've been praying for Jaden already this morning and will continue to lift all of you up! I'm asking the Lord to take care of that sweet baby, and to provide for those financial needs. Love you guys! Keep us posted on how he's doing.

DeniFay said...

Beth, I continue to read your blog in AWE!! You are so strong and so faithful throughout the road you travel and you are a blessing to so many by speaking with such honesty! I'm very glad that you noticed when you did Jaden's neck issue, and I know it seems major now, and it's hard and noone wants their children to suffer in any way, but being a therapist and watching so many PTs work with babies like this, I know they will get him back on the right track. And I totally mimick those thoughts of after suffering infertility you should get a break somewhere, but you are so right when you say that just isn't the case and God is surrounding each of us! Bless that sweet Jaden and Ty and I know God will provide for your family to take great care of both of them! Sending up prayers!

The Swann's said...

Oh hun! I think you were given some wonderfully encouraging verses to pray upon! I will keep you all in my prayers and know that God will provide...

The Swann's said...

Oh hun! I think you were given some wonderfully encouraging verses to pray upon! I will keep you all in my prayers and know that God will provide...

Andrea said...

Beth,

"He" WILL provide and he will Prevail. The road gets exhausting, but we continue to stay patient don't we. Rely on your great FAITH to continue to carry you and I'm confident all will be well.

I have a friend who's little son endured the same issue and through therapy and wearing the helmet he is now "perfect". The regimine was trying, but they made it :) You will too, and sweet Jayden will be even more perfect than he already is.

Much love to you and many hugs as you continue to feel God's grace.

xoxo

The Wright Family said...

much love and prayers for sweet jaden and you both...my sister walked through this with my niece and i well remember her emotions. knowing the lord will prove faithful in this too.